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High
School graduate Dan Burke, who has autism, will attend Colby College
this fall.
Overcoming Autism. Dan Burke finds his reality and is conquering
his world.
Friday,
July 12, 2002
By Colin Hickey, Staff Writer
Blethen Maine Newspapers Inc.
Turn
to Dan Burke's picture in this year's Winslow High School yearbook
and you will find a list of achievements and activities that is
considerable by any measure.
Burke,
19, excelled as a student, athlete and actor. He gained considerable
attention as host of a weekly commercial radio show — he won a statewide
contest to earn the privilege.
This fall he will attend Colby College, a liberal arts school with
a national reputation for excellence. Last week, he participated
in Boys' State, one of a select number of students throughout Maine
given that honor.
By
almost every measure, Burke is the all-American boy —a big, strapping,
highly motivated, talented winner.
But
there is another side to Dan Burke, a side that many have not seen,
or have seen only in part, that makes his story all the more intriguing
and his success all the more remarkable.
To understand Burke, to appreciate where he is today, you first
have to understand where he started.
You
have to understand that he was a child who did not truly speak for
the first five years of his life.
You
have to understand that he used to hide in a cabinet beneath the
kitchen sink for hours at a time.
You
have to understand that he used to wear winter clothes in the middle
of summer and that crowds and loud noises terrified him.
Christine
Burke knows this other side of her youngest son. She lived this
other side. In Dan's first years, when his condition was so perplexing,
Christine Burke took him to five pediatric specialists and got five
widely, different diagnoses.
Not surprisingly, she rejected the more disturbing conclusions.
One
doctor, however, came to a moderate determination that seemed to
have merit: pervasive developmental delay with autistic qualities.
But it was the reality, not the label, that concerned Christine.
As the months went by and her son remained silent — no goo-goos,
no gah-gahs — the fear intensified: What would become of her son?
Where could she find a connection?
"I could feel my child slipping away, and I was desperate to bring
him back," she said.
Burke ultimately found the connection — or at least a connection
— but she is the last one to paint herself as her son's savior,
a rescue person in the land of autism.
"I
laugh and say, 'No. He did this all himself.' Because if I take
credit, then I have to take blame," she said.
Winslow High School drama teacher Kathy Lauder, a big fan of Dan
Burke, supports Christine's theory. Like any good actor, Burke learned
to improvise, to overcome obstacles through his intelligence, creativity
and a drive that is unrelenting.
"He
really is the miracle boy," she said.
The
Burke Man Cometh
For
the past year, Dan Burke filled the Sunday 5 to 9 p.m. slot for
the Portland radio station, WCYY-FM (94.3, 93.9) — his stint as
a regular host just recently ended.
The
Burke Man Cometh was his on-air moniker. While a variation on the
famous play "The Ice Man Cometh," Burke's DJ identity was hardly
cool. His act was volume.
"I
was loud," Burke said. "I'd get on air at 5 p.m. and pretty much
yell at the top of my lungs."
Silent
child becomes loudmouth? Autistic misfit becomes commercial success?
How does one explain this metamorphosis? How can a guy who hid under
the kitchen sink become the host of his own radio show?
Christine
said the explanation really is quite simple: a DJ talks to the masses
but all he sees is a microphone, one inanimate object.
Herb
Ivy, WCYY program director, said radio can be a haven of sorts for
all types.
"They
don't know what you look like. They don't know how you dress," he
said. "For a regular person, you put them on air, and they are scared
to death. But for a person like Dan, he goes for it."
Faces, though, are different than microphones. Faces are harder.
Christine said her son avoided eye contact with other people for
much of his childhood. He hated to be in crowds.
Isolation,
places like the cabinet under the kitchen sink, served as sanctuaries
from a world that was overwhelming and, yet, a world of which he
desperately wanted to be a part.
And
that is why as a young boy he began to wear a sombrero, a fake beard
and pair of nonprescription eyeglasses. Christine said her son used
this disguise as a buffer zone, as a way to make the overwhelming
manageable.
The
radio station gig was a similar circumstance. While he might have
an audience that numbered in the thousands and the pressure of handling
on-air phone calls, Burke had the security of the studio, a small,
peaceful place far removed from listeners.
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Dan's
radio alias worked much the same way. If the world is threatening,
then it makes sense to conceal yourself, to go undercover, whether
with a sombrero and fake eyeglasses, or with a false persona.
"Pretty much I made up a lot of stuff," he said. "I came up with
a Don King persona kind of thing. I made myself the loudest person
you'll ever meet."
Jackson
Burke, Dan's older brother, is well versed on his brother's disguises.
Jackson, who will be a senior at Dartmouth College this fall, has
learned to appreciate his brother's coping skills, and admire his
determination to overcome the forces that drive him to be silent
and alone.
In a letter recommending that Dartmouth accept Dan as a student,
Jackson wrote about this determination:
"I
believe this is the source of his greatest strength, his strength
of will and character. Where others succumb, Dan perseveres. While
it is considered exceptional for an autistic to grow up to function
normally in the world, Dan excels. ... Dan has faced challenges
that I cannot even begin to understand, but I have rarely seen him
discouraged and have never heard him complain."
An Autistic Perspective
Christine,
on the other hand, was extremely discouraged during Dan's initial
years when, no matter how hard she tried, she could not engage her
second son, could not even get him to say "mommy."
"Dan
was not responding, and eventually I found myself not speaking to
him, and it was like a slap across the face, and I just made myself
keep talking to him," she said.
More than that, she decided she would make every effort to see the
world through her son's eyes, and that proved one of the keys to
unlocking the door to Dan's world.
Christine
accepted Dan's autism and developed strategies to deal with the
condition. Thus she took to talking to Dan as she washed dishes
and he sat hidden away below her, taking comfort in the sound of
the water rushing from the faucet.
In
time she discovered that Dan was especially attuned to music. To
teach him how to spell names, she set the names to song.
She
learned, too, about the gifts her son possessed, most notably his
remarkable memory.
Winslow
High School teacher Mark Pelletier said Dan can name every U.S.
president in order of their presidency — and this includes last,
first and middle name.
He
also is an authority on rock 'n' roll, alternative, jazz, blues
and Motown from the 1960s to the present — an ability of great benefit
to a radio DJ.
"He
is a walking bank of knowledge, and he remembers it all," Pelletier
said.
Pelletier
loves to tell stories of Dan's comic antics in his class — his Jack
Nicholson impersonations are a particular favorite. Still, Pelletier
also sees the dichotomy, the comic with autistic qualities.
"He loves being the center of attention, and he will bring it on,"
Pelletier said. "But he also is in his own world in a way."
Shaping a Self
Christine
is convinced that everybody is a little bit autistic at least on
occasion. Dan, she said, is just more autistic than most, and he
never takes a day off.
For a society that talks of diversity but practices conformity at
almost every level, this difference, this quality that sets Dan
apart from most, led to more than a few struggles during his childhood.
He
had the benefit of parents — his father John is a local doctor —
who provided constant support, and as Christine is quick to stress,
he had many fine teachers who, rather than puzzle at his peculiarities,
delighted in his uniqueness.
Christine
said as Dan's language skills developed, his innate intelligence
found pathways to surface from his autistic world.
That
intelligence coupled with his drive and determination, those qualities
that are Dan himself, ultimately is the key to his success: He shaped
who he has become, or, perhaps more accurately, he gave definition
to the person he has always been.
Winslow
High School teacher David Lachapelle, a class adviser for the most
recent Winslow graduates, suggested Dan when asked to recommend
a student who best could speak for the senior class.
Dan
as class spokesman. A remarkable achievement.
But,
today, so long removed from those years of silence, the accomplishments
do not seem as remarkable; they simply seem the normal doings of
a bright, ambitious student.
Even
Dan at times has taken this attitude. Those who know him best, know
better. They are not fooled.
Occasionally,
Christine said she has to remind Dan of what he has overcome and
what he must still overcome.
"When he was in eighth grade or a freshman, he told me 'I used to
be autistic, but I'm over that now.' And I said to Dan, 'You are
not over it. It is not necessarily something that somebody gets
rid of.' " Disguises. Personas. Aliases. With Dan, you wonder which
personality is the real him. The truth is all the above. There simply
is a lot to this guy. And that is no deception.
"I personally have always been myself," he said. "I wouldn't have
made it on the air if I hadn't been myself."
Colin
Hickey
chickey@centralmaine.com
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2001
Autism Rally, Conference, Hearings, and Caucus

Book
of the Week:
Sleep Better, A Guide to Improving
Sleep for Children with Special Needs; V. Mark Durand
Sign
Our Guestbook
Thanks to everyone who has signed it!
Attitude
is Everything!
Searchable
Databases:
Medline
Plus
Combined
Health Information Database (CHID) Online
NLM's
PubMed
Computer
Retrieval of Information on Scientific Projects (CRISP)
ClinicalTrials.gov

Salon
Cover Story on Autism:
"Secrets
and Lies" by Lesli
Mitchell
Crash
Course in Autism; Holiday Letter
about the challenges autistic individuals face during the
holidays.
New
eLearning course; What
is Autism? From The Autism Society of America.
Significant
statement on the incidence of autism in the sixth edition
of Child Neurology-2000, Menkes & Sarnat.
We
Cured Our Son's Autism by Karyn Seroussi
Helpful
Hints for Persons with Autism (This can be posted in a school
or other public place)
Tips
for Dealing with Doctors and Labs
Tips
for Families with a newly Diagnosed Child
Dr.
Jeff Bradstreet's Excellent 74 Page Biomedical Summary (PDF
format, may take a minute to load!)
Click
here to get Adobe Reader.
Autism
Recovery Network's excellent Resource
Guide. A great start for families of newly diagnosed kids.
(PDF
format, may take a minute to load!)
Click
here to get Adobe Reader.
PowerPoint
Presentations from the Spring DAN! 2001 Conference (Atlanta,
GA 2001) New!
Developmental
Milestones
New!
California Special Education Statewide Enrollment by Disability
Category 1985-1999; (illustrating a dramatic rise in the rates
of autism.)
Pins
and Bumperstickers
NICHD
Autism Fact Sheet
New!
Autism
Card That may be Displayed in a Public Place.
The
Autism Society of America's position on the relationship between
vaccinations and autism.
(PDF document)

Download for Free!
Kirkman Laboratories
Guide to Intestinal Health in Autism Spectrum Disorder. A
comprehensive review of intestinal health issues in Autism Spectrum
Disorders and the options available for treating them.
Houston
Nutraceuticals Digestive Enzymes

Show
your spirit! The
Autism Recovery Network offers 3 different autism awareness
ribbons. Children's or Men's small lapel pin with small red heart
only $2 each.
Misfortune
sometimes a blessing in disguise. Star NFL Quarterbacks and their
special-needs kids.
Article:
Autistic student, parents realize a dream.
"It's
not easy living with these kids(with autism), and anything that
makes their lives better makes the family's life better,"
Anonymous
Living
as an Autistic (a 1st-person account)
Understanding
Autism in Adults
Site
Awards:
Selected for WebBound's 2002 Spring Edition of 75,000 Best Web Sites;
Selected for reliability & ease of use. www.WebBound.com
Autism
Society of Florida Member's Choice for helpful websites
Featured
on Newstalk 920 am Melbourne, Florida
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